Shashi Prajapati

With a background ranging from small non-profits to large university and museum settings, Lisa brings 30 years of non-profit administration experience to ASF. In 2014, after her youngest son was diagnosed with Alport syndrome, Lisa began writing grant applications, attending patient advocacy events, and planning patient programs for ASF as a volunteer. Her son’s diagnosis led to her understanding of her own misdiagnosis stretching back more than four decades. As a patient, caregiver, and professional non-profit administrator, Lisa is uniquely qualified to help the Board of Directors lead Alport Syndrome Foundation’s efforts and is dedicated to the organization’s personally meaningful mission.